Thank You

You, our family and friends, are a tremendous support. We appreciate your calls, visits, good wishes, prayers, and positive thoughts. We will be updating this blog as more news comes about Rick's progress and treatment. Please feel free to comment, we love getting messages from all of you!

Sunday, March 21, 2010

Back from Boston



Hello Everyone -

In general, I don't visit blogs and have resisted starting this one. There are so many of you who care about Rick and have called and e-mailed to let us know you are thinking of us. We are truly honored and supported by your good wishes. We wanted an efficient way to let everyone know what is happening. However, Rick loves getting your phone calls and e-mails. He is energized by his visits with people - and so I encourage you to keep checking in with him from time to time. This blog is just a way for us to let you know what is going on.


We flew to Boston last Sunday. Rick's sister Suzi and her husband Timm met us at the airport and spent the week sitting in waiting rooms and clinics with us. Rick had additional tests on Monday, Tuesday, Wednesday, and Friday. (We are joking that Rick now glows in the dark.) We met with Dr. Sugarbaker and his team on Tuesday and they feel that Rick is an excellent candidate for a successful surgery. Dr. Sugarbaker said that he felt very confident that they could remove all the mesothelioma from Rick's pleura and there is a possibility that they can save his left lung.


Rick had a biopsy of some lymph nodes near the lung on Friday and they used a camera to examine his lungs at the same time. If there is meso in the lungs, it glitters. (The resident told Rick that although he wasn't supposed to say anything, the scope looked very good.) The results from the biopsy will be back by the end of this coming week. If they find no meso in the lymph nodes, then we will be scheduled for surgery (in Boston) in about two weeks. If there is lymph involvement, he will have a few rounds of chemotherapy and then we will return to Boston for the surgery. Until we have the results, we don't know what the time schedule will be. Pray for no lymph involvement.


In general, people are in the hospital from 7 to 14 days after surgery, although they have had people stay in hospital for up to 4 weeks. Then we will need to stay in Boston near the hospital for 4 to 6 weeks. The people there have been very helpful at giving us lists of where to stay.


Then we will be back in Tucson for chemotherapy. Often radiation is part of this process, but no one talked about radiation when we met with the team.


It was a very positive visit and we all left feeling extremely hopeful. We will let you know the results of the biopsy when we learn them. Again, thank you all for the support and good wishes.

Sue

10 comments:

  1. I'm thinking about you guys 24-7 . . . it's good to have a site where I can go to read the information. I do better reading then listening. I love you guys!

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  2. Ditto what my mom said, and I love love love the pictures at the top of the blog! Not surprised the resident slipped the confidential info; I bet Uncle Rick is everyone's favorite patient within 10 minutes of meeting him :)

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  4. First blog we've ever signed up for. That's how much we love the sailor! Best wishes from the Wood's of Wales. See you on SKYPE soon...

    PS & in deleted comment was meant to be
    simply Rich & Doreen !!

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  5. I love you guys - think about you every day Uncle Rick!!

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  6. Thanks for keeping us informed. We think about Rick frequently and pray for the best.

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  7. Ok- about those glittery lungs...The Onion once had an article about the disease "pneumosparklyosis" which was afflicting grade school teachers who used too much glitter....check out the scan of the lung...I guess that is what you DON'T want to see, right?:) http://www.theonion.com/articles/cases-of-glitter-lung-on-the-rise-among-elementary,1843/

    Thinking of you all and keeping you in my prayers!

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  8. Rick, Sue, and Family,
    Thank you for posting this site. I too have never visited one, and this is such a great way to feel updated and connected to you, my dear friends. The Boston plan sounds positive. Scott and I have you in our prayers daily.
    Love, Kathryn and Scott

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  9. Hi Rick and Sue,
    I'm glad we are able to keep up with the news without having to bug you all the time. Please know that our prayers are with you all and if there is ANYTHING we can do, let us know!
    John, Wendy and family (especially Mav!)

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  10. Thinking of you often, praying for you daily. It's so nice to have this site to visit and get updates on Rick's progress. If anyone can overcome this challenge, it's Rick -- go get 'em tiger! -joe & deb-

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